Sunday, August 2, 2020

Neuro Note #3

For my third neuro note, I decided to compile a list of some websites that gives some general information, insight, and support about some of the neurological conditions that we are studying in our course. It is a quick little guide to information about commonly heard of diseases and conditions. Something that I found very encouraging while making this list was the support that seems to be out there for those that suffer from these diseases and the support for their family and caregivers. I hope that it helps them to know that they are not alone in their disease and situations. I am definitely planning on looking more into how to get involved with some of these organizations and foundations.

1. Dementia - https://www.dementia.com/index.html
This website contains a lot of information to help people understand dementia better with its                         diagnosis, prognosis, progression, symptoms, and many more topics.

2. Traumatic brain injury - https://www.biausa.org
This resource contains information about brain injuries, helpful tips for caregivers and professionals, ways to give if you want to help, and testimonials of others and information for those with a brain injury.

3. Cerebrovascular accident (CVA or stroke) - https://www.stroke.org/en
This website offers lots of good resources for things stroke related. There is information about what a stroke is, life after a stroke, and help and support for people that have suffered from a stroke. It also offers healthy living tips and ways to get involved with stroke prevention and in the community.

4. Spinal cord injury - https://facingdisability.com
This website is full of resources that offer general information about SCI and bedsores, videos of experts and people with SCIs, and numerous resources for adaptive equipment, support, advocacy and many other topics.

5. Multiple sclerosis - https://mymsaa.org
This website has information about MS and many supportive resources for those that have MS. It offers a whole section of things for living with MS and there are also ways to donate and get involved.

6. Huntington's disease - https://hdsa.org
This source offers information about Huntington's disease and its symptoms and stages. It also has help to find places to receive clinical care and other support, tips for healthy living, and information about research being done for the disease.

7. Parkinson's disease - https://www.apdaparkinson.org
This website has information on Parkinson's disease, resources for those living with the disease, and updated research and webinars about it. There are also ways to get involved with local events for the disease.

8. Amyotrophic lateral sclerosis (ALS) - https://www.als.org
This is the official ALS website and it has all things that relate to the disease on it. Some of the main sections are entitled "understanding ALS" and "navigating ALS" and are full of good information and useful resources.

9. Myasthenia gravis - https://myasthenia.org
This website offers general information about the disease so a person could understand it better, along with treatment options and tips on management of the disease. It also has lots of information that will hopefully help a person live a full life with myasthenia gravis.

10. Guillain-Barrè syndrome - https://www.gbs-cidp.org/gbs/
This website has great information on Guillain-Barrè with a very easy to follow video on the disease. It is a foundation that offers support to those that suffer from this condition and has ways that you can advocate and volunteer to get involved with the community of people.


No comments:

Post a Comment